This week is International EB Awareness Week, a time to raise awareness of EB and the work being done to find a cure. Epidermolysis Bullosa is a rare, life-threatening group of genetic diseases that affects the skin, causing it to blister, tear and peel – internally and externally. Please help EB Research Partnership Australia cure EB by 2030 by donating. Follow the link in my bio🦋 We will cure EB! #butterfly #EBAwareness #HealEB
I had the most amazing time at #PowerMorphicon 💛 Thank you so much to everyone that came by to say hi! 😝 Love you guys HEAPS💛 #PowerRangers #yellowranger
Keeping calm while my toddler climbs the lighting equipment and my baby screams to be fed 😅 Thanks for having ALL of us @manfredbaumann and @nellybaumann ❤️ #happyweekend
Hey guys! This is Lisa🤩 She has #EB 🦋 She also has an epic sense of humor, an amazing outlook on life and STORIES😝 I’ve linked Lisa’s story in my bio. Please watch it. Lisa is such an inspiration. To all of you who have donated to @ebresearchaus , THANK YOU 😊 The research being done is helping gorgeous people like Lisa manage their EB. Your donations are making a difference ✨ And with your help we will #CureEB 💕 #ebawarenessweek
Hey guys! This is Lisa🤩 She has #EB 🦋 She also has an epic sense of humor, an amazing outlook on life and STORIES😝 I’ve linked Lisa’s story in my bio. Please watch it. Lisa is such an inspiration. To all of you who have donated to @ebresearchaus , THANK YOU 😊 The research being done is helping gorgeous people like Lisa manage their EB. Your donations are making a difference ✨ And with your help we will #CureEB 💕 #ebawarenessweek
Hey guys! This is Lisa🤩 She has #EB 🦋 She also has an epic sense of humor, an amazing outlook on life and STORIES😝 I’ve linked Lisa’s story in my bio. Please watch it. Lisa is such an inspiration. To all of you who have donated to @ebresearchaus , THANK YOU 😊 The research being done is helping gorgeous people like Lisa manage their EB. Your donations are making a difference ✨ And with your help we will #CureEB 💕 #ebawarenessweek
Over $1,000,000 raised for @childrensla 😝 Thank YOU for supporting @malibutri ❤️
Over $1,000,000 raised for @childrensla 😝 Thank YOU for supporting @malibutri ❤️
Over $1,000,000 raised for @childrensla 😝 Thank YOU for supporting @malibutri ❤️
STOKED 😝👍🏼 Epic swim clinic taken by @tricoachian for the @malibutri 🏊🏼♀️ 🚴🏼♀️ 🏃🏼♀️ One week to go!! Thank you SO much to everyone who has donated to the @childrensla ❤️
STOKED 😝👍🏼 Epic swim clinic taken by @tricoachian for the @malibutri 🏊🏼♀️ 🚴🏼♀️ 🏃🏼♀️ One week to go!! Thank you SO much to everyone who has donated to the @childrensla ❤️
Happy birthday my sweet, smart, hilarious, trex, mermaid, princess, adventurous love. You’re the absolute best 😝 I LOVE you so much💕💕💕
Happy birthday my sweet, smart, hilarious, trex, mermaid, princess, adventurous love. You’re the absolute best 😝 I LOVE you so much💕💕💕
Happy birthday my sweet, smart, hilarious, trex, mermaid, princess, adventurous love. You’re the absolute best 😝 I LOVE you so much💕💕💕
STOKED 😝👍🏼 Epic swim clinic taken by @tricoachian for the @malibutri 🏊🏼♀️ 🚴🏼♀️ 🏃🏼♀️ One week to go!! Thank you SO much to everyone who has donated to the @childrensla ❤️
STOKED 😝👍🏼 Epic swim clinic taken by @tricoachian for the @malibutri 🏊🏼♀️ 🚴🏼♀️ 🏃🏼♀️ One week to go!! Thank you SO much to everyone who has donated to the @childrensla ❤️
Couldn’t have picked a more gorgeous day for our final training swim before the @malibutri this weekend ☀️ 🏊🏼♀️🚴🏼♀️🏃🏼♀️Thank you so much to everyone who has donated to @childrensla ❤️
Couldn’t have picked a more gorgeous day for our final training swim before the @malibutri this weekend ☀️ 🏊🏼♀️🚴🏼♀️🏃🏼♀️Thank you so much to everyone who has donated to @childrensla ❤️
