Amanda Fuller Instagram – Wearing stripes today in honor of my magical lil person for #rarediseaseday !
As many of you know by now, our bucket of love has severe Hemophilia B- a rare disease that is estimated to be in approximately 1 case per 25,000-30,000 male births.
If I have learned anything about people with a rare disease since meeting Hayes, it is that they are resilient superhuman’s of strength, personality, humor, LIGHT and LOVE. Unique masters of life. I am in awe of this community and have insurmountable pride to be Hayes Blue’s momma.
Sending love and admiration to all those thriving with a rare disease, their caregivers and all who love them unconditionally, regardless of the (sometimes unbearable) challenges we are all faced with.
💙💙💙 | Posted on 01/Mar/2023 05:34:28
