Quinn Brett Instagram – Flat on my back with a newly anointed #spinalcordinjury I scoured the internet absorbing whatever I could to educate myself, my family, my friends, and in turn the instagram world about SCIs.
Like you, I was shocked my quadzillas were no longer able to stomp up hill but the stark reality of not feeling when my bladder was full, now having to stick a finger in my ass to initiate a poop and an incessant burning sensation in my lower half. #neuropathicpain
What drugs are you giving me and why? Why did it take 5 days until my spinal stabilization surgery? Why is my whole lower half tingling? Is this really how far we have come in the wheelchair business and overall neurological disorder research? I was confused, angry, disappointed and grasping for educated voices.
I found @u2fp — a growing non-profit organization based in my childhood stomping grounds of Minneapolis. They had published a book and I am still AWE struck that although it is FREE on Amazon that it is NOT stock piled at EVERY rehab hospital. Search – “Don’t Call It a Miracle” Download it. Read it. Thanks. 🤙🏼
I found their podcast— The CureCast. Link in my Bio. Start listening, go back to the first episodes to learn about the SCIENCE of what is HAPPENING in my spinal column. You will have a better understanding that my spinal cord IS INDEED NOT completely severed. I have a dime sized bruise that is blocked up with cells that intended to heal and instead created a nasty environment in which signals don’t get across, or do for some on a mixed sort of way. 🪢
I learned, I am not a hopeless cause. I may never run again but fixing my bladder or feeling a hand on my thigh are useful recovery of function research that IS ongoing AND IN HUMAN CLINICAL TRIALS because of U2FP’s extensive work. ❤️
All this to say, I have taken a full-time position as the Development Director with U2FP. I want to amplify our message of restorative function in paralysis through advocacy, education, and support for research.
I strongly believe it is not impossible. Every person should have equal access to treatments that will restore health and independence after spinal cord injury. #impossibleisnothing | Posted on 13/Dec/2023 07:18:38
