Dianna Cowern Instagram – Health Update from Dianna (posted by Kyle)
Thank you everyone so much for the kind messages and checking in. The support and love is overwhelming.
I just don’t know how to respond. I am…very sick.
My brain works at 20% capacity a few minutes a day. I can barely move or talk. The rest of the time, I lie here with my eyes closed in a quiet dark room, no music, no reading, no phone. I count breaths, meditate, repeat mantras to soothe my fears. Sometimes I succeed.
I have severe MCAS. (And severe MECFS, POTS, SIBO, and a lower gut infection, that have been diagnosed so far.)
The MCAS is brutal. I get dizziness, nausea, and chest pain from everything. Every food I eat, fragrance I smell, organic cotton sheets that have been boiled with no detergent, all my meds (that are supposed to help MCAS). I can’t wear clothes, I can’t use toothpaste, Kyle has to boil hypoallergenic baby wipes so I can “bathe” without getting rashes. This disease is truly horrible.
But we’re still trying treatments. And I promise, I am hanging in there. I have the best support system I could imagine, you all included. ❤ D
#longcovid #mecfs #mcas | Posted on 02/Jul/2023 02:24:36



