“But you don’t look sick!” Those words, though well-intentioned, sometimes make me want to punch a wall, depending on the kind of day I’m having… 😆 While lupus affects millions of people around the world, the general public knows little to nothing about the disease. Those suffering with #lupus often don’t appear unwell. The following is my feeble attempt to convey what #LivingWithLupus looks like in just ten photos. May is #LupusAwarenessMonth, so to amplify awareness, I’m sharing some personal moments from my life in surviving this chronic, often debilitating disease. I’ve lived with lupus for decades, and over the years I’ve been hospitalized for flares of the lungs, kidneys and central nervous system. But I’m still here and thriving thanks to the care of my stellar medical team, innovative drug treatments, stress and wellness management, and the love and support of my incredible husband and daughter, family and friends. 💜 Navigating this disease has been a lifelong journey, which is why my work with @lupusla is deeply important to me. At #LupusLA we are committed to finding a cure, while providing support, services, and hope to all who suffer from lupus. Through fundraising events, community support, and advocacy, we aim to raise awareness and improve the lives of those affected by this autoimmune disease, both in Los Angeles and around the world. For more information, or if you’d like to donate to our cause, please go to www.lupusla.org. Thank you! p.s. Shoutout to @selashiloni and @_beautybygg_ for making me look good even when I wasn’t feeling my best. 📸✨
“But you don’t look sick!” Those words, though well-intentioned, sometimes make me want to punch a wall, depending on the kind of day I’m having… 😆 While lupus affects millions of people around the world, the general public knows little to nothing about the disease. Those suffering with #lupus often don’t appear unwell. The following is my feeble attempt to convey what #LivingWithLupus looks like in just ten photos. May is #LupusAwarenessMonth, so to amplify awareness, I’m sharing some personal moments from my life in surviving this chronic, often debilitating disease. I’ve lived with lupus for decades, and over the years I’ve been hospitalized for flares of the lungs, kidneys and central nervous system. But I’m still here and thriving thanks to the care of my stellar medical team, innovative drug treatments, stress and wellness management, and the love and support of my incredible husband and daughter, family and friends. 💜 Navigating this disease has been a lifelong journey, which is why my work with @lupusla is deeply important to me. At #LupusLA we are committed to finding a cure, while providing support, services, and hope to all who suffer from lupus. Through fundraising events, community support, and advocacy, we aim to raise awareness and improve the lives of those affected by this autoimmune disease, both in Los Angeles and around the world. For more information, or if you’d like to donate to our cause, please go to www.lupusla.org. Thank you! p.s. Shoutout to @selashiloni and @_beautybygg_ for making me look good even when I wasn’t feeling my best. 📸✨
“But you don’t look sick!” Those words, though well-intentioned, sometimes make me want to punch a wall, depending on the kind of day I’m having… 😆 While lupus affects millions of people around the world, the general public knows little to nothing about the disease. Those suffering with #lupus often don’t appear unwell. The following is my feeble attempt to convey what #LivingWithLupus looks like in just ten photos. May is #LupusAwarenessMonth, so to amplify awareness, I’m sharing some personal moments from my life in surviving this chronic, often debilitating disease. I’ve lived with lupus for decades, and over the years I’ve been hospitalized for flares of the lungs, kidneys and central nervous system. But I’m still here and thriving thanks to the care of my stellar medical team, innovative drug treatments, stress and wellness management, and the love and support of my incredible husband and daughter, family and friends. 💜 Navigating this disease has been a lifelong journey, which is why my work with @lupusla is deeply important to me. At #LupusLA we are committed to finding a cure, while providing support, services, and hope to all who suffer from lupus. Through fundraising events, community support, and advocacy, we aim to raise awareness and improve the lives of those affected by this autoimmune disease, both in Los Angeles and around the world. For more information, or if you’d like to donate to our cause, please go to www.lupusla.org. Thank you! p.s. Shoutout to @selashiloni and @_beautybygg_ for making me look good even when I wasn’t feeling my best. 📸✨
“But you don’t look sick!” Those words, though well-intentioned, sometimes make me want to punch a wall, depending on the kind of day I’m having… 😆 While lupus affects millions of people around the world, the general public knows little to nothing about the disease. Those suffering with #lupus often don’t appear unwell. The following is my feeble attempt to convey what #LivingWithLupus looks like in just ten photos. May is #LupusAwarenessMonth, so to amplify awareness, I’m sharing some personal moments from my life in surviving this chronic, often debilitating disease. I’ve lived with lupus for decades, and over the years I’ve been hospitalized for flares of the lungs, kidneys and central nervous system. But I’m still here and thriving thanks to the care of my stellar medical team, innovative drug treatments, stress and wellness management, and the love and support of my incredible husband and daughter, family and friends. 💜 Navigating this disease has been a lifelong journey, which is why my work with @lupusla is deeply important to me. At #LupusLA we are committed to finding a cure, while providing support, services, and hope to all who suffer from lupus. Through fundraising events, community support, and advocacy, we aim to raise awareness and improve the lives of those affected by this autoimmune disease, both in Los Angeles and around the world. For more information, or if you’d like to donate to our cause, please go to www.lupusla.org. Thank you! p.s. Shoutout to @selashiloni and @_beautybygg_ for making me look good even when I wasn’t feeling my best. 📸✨
“But you don’t look sick!” Those words, though well-intentioned, sometimes make me want to punch a wall, depending on the kind of day I’m having… 😆 While lupus affects millions of people around the world, the general public knows little to nothing about the disease. Those suffering with #lupus often don’t appear unwell. The following is my feeble attempt to convey what #LivingWithLupus looks like in just ten photos. May is #LupusAwarenessMonth, so to amplify awareness, I’m sharing some personal moments from my life in surviving this chronic, often debilitating disease. I’ve lived with lupus for decades, and over the years I’ve been hospitalized for flares of the lungs, kidneys and central nervous system. But I’m still here and thriving thanks to the care of my stellar medical team, innovative drug treatments, stress and wellness management, and the love and support of my incredible husband and daughter, family and friends. 💜 Navigating this disease has been a lifelong journey, which is why my work with @lupusla is deeply important to me. At #LupusLA we are committed to finding a cure, while providing support, services, and hope to all who suffer from lupus. Through fundraising events, community support, and advocacy, we aim to raise awareness and improve the lives of those affected by this autoimmune disease, both in Los Angeles and around the world. For more information, or if you’d like to donate to our cause, please go to www.lupusla.org. Thank you! p.s. Shoutout to @selashiloni and @_beautybygg_ for making me look good even when I wasn’t feeling my best. 📸✨
“But you don’t look sick!” Those words, though well-intentioned, sometimes make me want to punch a wall, depending on the kind of day I’m having… 😆 While lupus affects millions of people around the world, the general public knows little to nothing about the disease. Those suffering with #lupus often don’t appear unwell. The following is my feeble attempt to convey what #LivingWithLupus looks like in just ten photos. May is #LupusAwarenessMonth, so to amplify awareness, I’m sharing some personal moments from my life in surviving this chronic, often debilitating disease. I’ve lived with lupus for decades, and over the years I’ve been hospitalized for flares of the lungs, kidneys and central nervous system. But I’m still here and thriving thanks to the care of my stellar medical team, innovative drug treatments, stress and wellness management, and the love and support of my incredible husband and daughter, family and friends. 💜 Navigating this disease has been a lifelong journey, which is why my work with @lupusla is deeply important to me. At #LupusLA we are committed to finding a cure, while providing support, services, and hope to all who suffer from lupus. Through fundraising events, community support, and advocacy, we aim to raise awareness and improve the lives of those affected by this autoimmune disease, both in Los Angeles and around the world. For more information, or if you’d like to donate to our cause, please go to www.lupusla.org. Thank you! p.s. Shoutout to @selashiloni and @_beautybygg_ for making me look good even when I wasn’t feeling my best. 📸✨
“But you don’t look sick!” Those words, though well-intentioned, sometimes make me want to punch a wall, depending on the kind of day I’m having… 😆 While lupus affects millions of people around the world, the general public knows little to nothing about the disease. Those suffering with #lupus often don’t appear unwell. The following is my feeble attempt to convey what #LivingWithLupus looks like in just ten photos. May is #LupusAwarenessMonth, so to amplify awareness, I’m sharing some personal moments from my life in surviving this chronic, often debilitating disease. I’ve lived with lupus for decades, and over the years I’ve been hospitalized for flares of the lungs, kidneys and central nervous system. But I’m still here and thriving thanks to the care of my stellar medical team, innovative drug treatments, stress and wellness management, and the love and support of my incredible husband and daughter, family and friends. 💜 Navigating this disease has been a lifelong journey, which is why my work with @lupusla is deeply important to me. At #LupusLA we are committed to finding a cure, while providing support, services, and hope to all who suffer from lupus. Through fundraising events, community support, and advocacy, we aim to raise awareness and improve the lives of those affected by this autoimmune disease, both in Los Angeles and around the world. For more information, or if you’d like to donate to our cause, please go to www.lupusla.org. Thank you! p.s. Shoutout to @selashiloni and @_beautybygg_ for making me look good even when I wasn’t feeling my best. 📸✨
“But you don’t look sick!” Those words, though well-intentioned, sometimes make me want to punch a wall, depending on the kind of day I’m having… 😆 While lupus affects millions of people around the world, the general public knows little to nothing about the disease. Those suffering with #lupus often don’t appear unwell. The following is my feeble attempt to convey what #LivingWithLupus looks like in just ten photos. May is #LupusAwarenessMonth, so to amplify awareness, I’m sharing some personal moments from my life in surviving this chronic, often debilitating disease. I’ve lived with lupus for decades, and over the years I’ve been hospitalized for flares of the lungs, kidneys and central nervous system. But I’m still here and thriving thanks to the care of my stellar medical team, innovative drug treatments, stress and wellness management, and the love and support of my incredible husband and daughter, family and friends. 💜 Navigating this disease has been a lifelong journey, which is why my work with @lupusla is deeply important to me. At #LupusLA we are committed to finding a cure, while providing support, services, and hope to all who suffer from lupus. Through fundraising events, community support, and advocacy, we aim to raise awareness and improve the lives of those affected by this autoimmune disease, both in Los Angeles and around the world. For more information, or if you’d like to donate to our cause, please go to www.lupusla.org. Thank you! p.s. Shoutout to @selashiloni and @_beautybygg_ for making me look good even when I wasn’t feeling my best. 📸✨
“But you don’t look sick!” Those words, though well-intentioned, sometimes make me want to punch a wall, depending on the kind of day I’m having… 😆 While lupus affects millions of people around the world, the general public knows little to nothing about the disease. Those suffering with #lupus often don’t appear unwell. The following is my feeble attempt to convey what #LivingWithLupus looks like in just ten photos. May is #LupusAwarenessMonth, so to amplify awareness, I’m sharing some personal moments from my life in surviving this chronic, often debilitating disease. I’ve lived with lupus for decades, and over the years I’ve been hospitalized for flares of the lungs, kidneys and central nervous system. But I’m still here and thriving thanks to the care of my stellar medical team, innovative drug treatments, stress and wellness management, and the love and support of my incredible husband and daughter, family and friends. 💜 Navigating this disease has been a lifelong journey, which is why my work with @lupusla is deeply important to me. At #LupusLA we are committed to finding a cure, while providing support, services, and hope to all who suffer from lupus. Through fundraising events, community support, and advocacy, we aim to raise awareness and improve the lives of those affected by this autoimmune disease, both in Los Angeles and around the world. For more information, or if you’d like to donate to our cause, please go to www.lupusla.org. Thank you! p.s. Shoutout to @selashiloni and @_beautybygg_ for making me look good even when I wasn’t feeling my best. 📸✨
🎬 And… ACTION: Season 7 Episode 7 is live! ✨
⭐ Listen as co-hosts Naina and Isabel, along with DAG’s Podcast Manager Lindsay, chat with Maurissa Tancharoen, co-creator of Marvel’s Agents of SHIELD! From advice she wished she knew before in the TV/film industry to her thoughts on the recent SAG and WGA strikes and the historic wins that resulted, hear it all and more by clicking the link in our bio! 🎧
📣 Listen to Season 7 Episode 7 out NOW on ALL major podcast platforms!
Writer: Emma
Illustrator: Rin
#DearAsianGirl #DAG #MarvelsAgentsofSHIELD #Marvel #TV #Film #tv #showrunner
🎬 And… ACTION: Season 7 Episode 7 is live! ✨
⭐ Listen as co-hosts Naina and Isabel, along with DAG’s Podcast Manager Lindsay, chat with Maurissa Tancharoen, co-creator of Marvel’s Agents of SHIELD! From advice she wished she knew before in the TV/film industry to her thoughts on the recent SAG and WGA strikes and the historic wins that resulted, hear it all and more by clicking the link in our bio! 🎧
📣 Listen to Season 7 Episode 7 out NOW on ALL major podcast platforms!
Writer: Emma
Illustrator: Rin
#DearAsianGirl #DAG #MarvelsAgentsofSHIELD #Marvel #TV #Film #tv #showrunner
🎬 And… ACTION: Season 7 Episode 7 is live! ✨
⭐ Listen as co-hosts Naina and Isabel, along with DAG’s Podcast Manager Lindsay, chat with Maurissa Tancharoen, co-creator of Marvel’s Agents of SHIELD! From advice she wished she knew before in the TV/film industry to her thoughts on the recent SAG and WGA strikes and the historic wins that resulted, hear it all and more by clicking the link in our bio! 🎧
📣 Listen to Season 7 Episode 7 out NOW on ALL major podcast platforms!
Writer: Emma
Illustrator: Rin
#DearAsianGirl #DAG #MarvelsAgentsofSHIELD #Marvel #TV #Film #tv #showrunner
🎬 And… ACTION: Season 7 Episode 7 is live! ✨
⭐ Listen as co-hosts Naina and Isabel, along with DAG’s Podcast Manager Lindsay, chat with Maurissa Tancharoen, co-creator of Marvel’s Agents of SHIELD! From advice she wished she knew before in the TV/film industry to her thoughts on the recent SAG and WGA strikes and the historic wins that resulted, hear it all and more by clicking the link in our bio! 🎧
📣 Listen to Season 7 Episode 7 out NOW on ALL major podcast platforms!
Writer: Emma
Illustrator: Rin
#DearAsianGirl #DAG #MarvelsAgentsofSHIELD #Marvel #TV #Film #tv #showrunner
💗
Okay 2024, time to fix it all. No pressure or anything…
How we celebrate 20 years together. ❤️ Museum of Illusions
Merry merry 2023!
Merry merry 2023!
We did the damn thing. Love this group of beautiful and talented people! #TheShimmies #HSHGala2024
We did the damn thing. Love this group of beautiful and talented people! #TheShimmies #HSHGala2024
Plenty to be thankful for. ❤️🍁🦃✨
We’re thrilled to announce the unveiling of Lupus LA’s 2024 Patient Advocacy Panel! 🎉 This initiative is all about amplifying the voices of those living with lupus to drive meaningful change and foster a deeper understanding of this challenging autoimmune disease. Our Patient Advocacy Panel consists of remarkable individuals who are not just survivors – but warriors – in every sense. These leaders will make a unique impact by working closely with our team, sharing their unique experiences and advocating for an improved patient experience, faster diagnoses through awareness – and more. Meet the Panel: LupusLA.org/patient-advocacy-panel 🔹 Maurissa Tancharoen Whedon, Lupus LA Co-Chair 🔹 Stacey Uberstine, Lupus LA Co-Chair 🔹 Vania Dzib 🔹 Cambria Francesca 🔹 Victoria Gibbs 🔹 Alexa Hamburger 🔹 Liz Morasso, LCSW, OSW-C Our commitment is stronger than ever to transform pain into promise, utilizing the power of personal stories to shine a light on lupus. From our award-winning podcast, Your Story Our Fight™, to this new panel, every step we take is aimed at elevating lupus awareness and shortening the time to diagnosis. With over 60,000 affected in Los Angeles County alone and no cure in sight, the need for awareness and understanding is critical. Lupus LA has tirelessly worked to bridge this gap, raising over $13 million for the cause and reaching over 4.3 million individuals globally through our digital patient educational programming. 🔗 Tap our link in bio to learn more about our 2024 Patient Advocacy Panel Members! #LupusLA #YourStoryOurFight #LupusAwareness
