Dawn McCoy Instagram – I started today with an overabundance of enthusiasm, positivity, optimism, spirit and cheer.
Played our morning playlist and danced with my boy? ✅
Took donuts for the teachers? ✅
Printed Waylon’s “All About Waylon” info sheet and put them in sheet protectors to hand out to all staff. ✅
Waylon was gonna have the BEST day at school.
I was determined he would.🤗
And I think he had a really good one. I do.
But I can’t say the same.
We arrived at school and after I’d greeted his teacher, I asked where Waylon’s 1-on-1 aide was.
No one knew.
An hour goes by.
And there’s no sign of his aide that we’ve had with us since May.
Within about 3 hours, I learn that his aide has been reassigned, a new aide assigned, the agency didn’t call to tell me and that new aide called out sick today.
As I watched my son sitting alone in his wheelchair on the playground…
while all the other kids played around him, making their joyful noise…
My heart sank.
This was my fear for him in school.
To be sitting there alone.
It was only for a bit. (His teacher and teaching assistants are GREAT🩵) but it was long enough for all sorts of PTSD, fears & futurescaping to monkey bar their way into my brain and heart.
I found myself angry at the agency who provides the aides…
I found myself angry at the new aide who called in sick too late to get us a timely substitute to care for my son…
And, most of all, I found myself LIVID at the monster who irreversibly hurt my son and damaged 50-75% of his brain.
We hosted 3 @lovingwayfoundation stays for families last week and I felt out-of-this-world joy all week long…
But today savagely reminded me where our mission comes from:
From a monster who unconscionably hurt a child and changed the trajectory of his life forever.
Tonight, I read Waylon one of our favorite books – “You’re Here For A Reason” & found myself sobbing as I read the words,
“You’re here for a reason, you certainly are.
The world would be different without you, by far.
Life works together, the good and the bad,
the silly and awful, the happy & sad,
to paint a big picture we can’t always see…
a picture that needs you, most definitely.”
It certainly does, sweet boy.
It certainly does.🩵 | Posted on 13/Aug/2024 09:31:24
