Jennie Jacques

Jennie Jacques Instagram – Hello 👋 I’m still M.E.
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I went from high flying in my career #actress @historyvikings @netflix @bbc @itv various fun roles! Completing my @spartanrace trifecta 💪🩱🏃‍♀️& more! To buying my own London 🏡 (independently) #firsttimehomebuyer – to being bedridden & dependent on my partner, at times even to wash my hair 🧼 💕
For a long time I couldn’t get out in a wheelchair ♿️ #dysautonomia – sitting up (even in bed!) was out of reach.

I caught a virus 🦠 2018 which is still affecting my mobility (physically, cognitively) 2024 💩 #mecfs #chronicpain

This is NOT “new” or “mysterious.”
There are #millionsmissing with it. Sadly. And many more with #longcovid – as predicted.

I’m hopeful @decodemestudy puts us on the map 🗺️ & scientists like @polybiorf continue pioneering 💥

I’m in a fortunate percentage 🍀 to see improvement – though slow (and sometimes unpredictable!) I hold on to this, dearly ❤️ ☀️

I used to feel like there was an “old” Jennie and a “new” one. I grieved my old self… but (more recently) I’m accepting I’m still just ME… 😊 hence the collection of mixed pics! #tbt

I encourage you to look up #severeme today 🙏 on #severemeawareness 8th August 🌻

As a person at the milder end (which is still disastrous to navigate) having experienced only small tastes of the more severe… I can vouch for the monsterous gravity of #me

I pray 🙏 for the science to continue to catch up. And for the unforgivable GAP between “doctors” and science to bridge 🌉

I could not clear a nasty virus from my blood 🩸 for some time 🕰️ (years – this part is unusual, but NB* viruses do persist in tissues too!)
EBV Viremia was my diagnosis with ME/CFS… and although I had a good infectious diseases team, no one could help… severe viral hepatitis and other things (pesky kidney stones, chronic UTI’s etc) hindered my recovery… my immune system took a hit 💥
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I post today for any person suffering with the same (or similar) in hope they feel heard. And to encourage healthy folk to donate to @mefoggydog and post a PJ pic to acknowledge #severemeday 💙🦋
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Please sign letter ✉️ for a protocol in our #nhs hospital 🏥 for Severe ME. Link in bio; Foggy’s website! | Posted on 08/Aug/2024 15:53:22