(A more real/raw update from Dianna, posted by Kyle)
It’s been nearly 5 months of being completely bedridden. I’ve made very little progress. I can still barely move, or think or talk.
I want to be out in the world living a life. My body hurts. But my heart hurts more.
I wish I had a more positive update, but this is the reality of my #longcovid
#mecfs #mcas
(A more real/raw update from Dianna, posted by Kyle)
It’s been nearly 5 months of being completely bedridden. I’ve made very little progress. I can still barely move, or think or talk.
I want to be out in the world living a life. My body hurts. But my heart hurts more.
I wish I had a more positive update, but this is the reality of my #longcovid
#mecfs #mcas
Health Update from Dianna (posted by Kyle)
Thank you everyone so much for the kind messages and checking in. The support and love is overwhelming.
I just don’t know how to respond. I am…very sick.
My brain works at 20% capacity a few minutes a day. I can barely move or talk. The rest of the time, I lie here with my eyes closed in a quiet dark room, no music, no reading, no phone. I count breaths, meditate, repeat mantras to soothe my fears. Sometimes I succeed.
I have severe MCAS. (And severe MECFS, POTS, SIBO, and a lower gut infection, that have been diagnosed so far.)
The MCAS is brutal. I get dizziness, nausea, and chest pain from everything. Every food I eat, fragrance I smell, organic cotton sheets that have been boiled with no detergent, all my meds (that are supposed to help MCAS). I can’t wear clothes, I can’t use toothpaste, Kyle has to boil hypoallergenic baby wipes so I can “bathe” without getting rashes. This disease is truly horrible.
But we’re still trying treatments. And I promise, I am hanging in there. I have the best support system I could imagine, you all included. ❤ D
#longcovid #mecfs #mcas
Health Update from Dianna (posted by Kyle)
Thank you everyone so much for the kind messages and checking in. The support and love is overwhelming.
I just don’t know how to respond. I am…very sick.
My brain works at 20% capacity a few minutes a day. I can barely move or talk. The rest of the time, I lie here with my eyes closed in a quiet dark room, no music, no reading, no phone. I count breaths, meditate, repeat mantras to soothe my fears. Sometimes I succeed.
I have severe MCAS. (And severe MECFS, POTS, SIBO, and a lower gut infection, that have been diagnosed so far.)
The MCAS is brutal. I get dizziness, nausea, and chest pain from everything. Every food I eat, fragrance I smell, organic cotton sheets that have been boiled with no detergent, all my meds (that are supposed to help MCAS). I can’t wear clothes, I can’t use toothpaste, Kyle has to boil hypoallergenic baby wipes so I can “bathe” without getting rashes. This disease is truly horrible.
But we’re still trying treatments. And I promise, I am hanging in there. I have the best support system I could imagine, you all included. ❤ D
#longcovid #mecfs #mcas
Dianna’s husband washing her hair. Kyle has to do it for her, as she is too weak to do it herself. Caring for Dianna is a 24/7 job and it’s only possible through all the help and support she receives.
#longcovid #chronicfatigue #MECFS #notaflue
Dianna’s husband washing her hair. Kyle has to do it for her, as she is too weak to do it herself. Caring for Dianna is a 24/7 job and it’s only possible through all the help and support she receives.
#longcovid #chronicfatigue #MECFS #notaflue
Dianna’s husband washing her hair. Kyle has to do it for her, as she is too weak to do it herself. Caring for Dianna is a 24/7 job and it’s only possible through all the help and support she receives.
#longcovid #chronicfatigue #MECFS #notaflue
Dianna’s husband washing her hair. Kyle has to do it for her, as she is too weak to do it herself. Caring for Dianna is a 24/7 job and it’s only possible through all the help and support she receives.
#longcovid #chronicfatigue #MECFS #notaflue
Dianna’s husband washing her hair. Kyle has to do it for her, as she is too weak to do it herself. Caring for Dianna is a 24/7 job and it’s only possible through all the help and support she receives.
#longcovid #chronicfatigue #MECFS #notaflue
We filmed this a few days ago. Dianna’s hair was hard for her to maintain in her current state. So to our surprise she cut a good chunk off while I was there.
Health – Dianna is not needing to go to the E.R. at the moment. But she is still crashing heavily and is bed-ridden 24-7 as usual.
#longcovid #mecfs #chronicfatigue #notaflu
Did you know the Badwater Basin in Death Valley is the lowest point in the contiguous U.S. at 282 ft. below sea level? And it is only roughly 80-85 miles from the highest point, Mount Whitney.
This is a little throwback to when Dianna went to Death Valley to explore the mysterious moving rocks at the Racetrack Playa.
#PhysicsGirl #geology #deathvalley #theracetrackplaya #badwaterbasin #SailingStones #mystery #geologymystery
Did you know the Badwater Basin in Death Valley is the lowest point in the contiguous U.S. at 282 ft. below sea level? And it is only roughly 80-85 miles from the highest point, Mount Whitney.
This is a little throwback to when Dianna went to Death Valley to explore the mysterious moving rocks at the Racetrack Playa.
#PhysicsGirl #geology #deathvalley #theracetrackplaya #badwaterbasin #SailingStones #mystery #geologymystery
Did you know the Badwater Basin in Death Valley is the lowest point in the contiguous U.S. at 282 ft. below sea level? And it is only roughly 80-85 miles from the highest point, Mount Whitney.
This is a little throwback to when Dianna went to Death Valley to explore the mysterious moving rocks at the Racetrack Playa.
#PhysicsGirl #geology #deathvalley #theracetrackplaya #badwaterbasin #SailingStones #mystery #geologymystery
Did you know the Badwater Basin in Death Valley is the lowest point in the contiguous U.S. at 282 ft. below sea level? And it is only roughly 80-85 miles from the highest point, Mount Whitney.
This is a little throwback to when Dianna went to Death Valley to explore the mysterious moving rocks at the Racetrack Playa.
#PhysicsGirl #geology #deathvalley #theracetrackplaya #badwaterbasin #SailingStones #mystery #geologymystery
Did you know the Badwater Basin in Death Valley is the lowest point in the contiguous U.S. at 282 ft. below sea level? And it is only roughly 80-85 miles from the highest point, Mount Whitney.
This is a little throwback to when Dianna went to Death Valley to explore the mysterious moving rocks at the Racetrack Playa.
#PhysicsGirl #geology #deathvalley #theracetrackplaya #badwaterbasin #SailingStones #mystery #geologymystery
Did you know the Badwater Basin in Death Valley is the lowest point in the contiguous U.S. at 282 ft. below sea level? And it is only roughly 80-85 miles from the highest point, Mount Whitney.
This is a little throwback to when Dianna went to Death Valley to explore the mysterious moving rocks at the Racetrack Playa.
#PhysicsGirl #geology #deathvalley #theracetrackplaya #badwaterbasin #SailingStones #mystery #geologymystery
Did you know the Badwater Basin in Death Valley is the lowest point in the contiguous U.S. at 282 ft. below sea level? And it is only roughly 80-85 miles from the highest point, Mount Whitney.
This is a little throwback to when Dianna went to Death Valley to explore the mysterious moving rocks at the Racetrack Playa.
#PhysicsGirl #geology #deathvalley #theracetrackplaya #badwaterbasin #SailingStones #mystery #geologymystery
Did you know the Badwater Basin in Death Valley is the lowest point in the contiguous U.S. at 282 ft. below sea level? And it is only roughly 80-85 miles from the highest point, Mount Whitney.
This is a little throwback to when Dianna went to Death Valley to explore the mysterious moving rocks at the Racetrack Playa.
#PhysicsGirl #geology #deathvalley #theracetrackplaya #badwaterbasin #SailingStones #mystery #geologymystery
Dianna in front of the ALICE experiment at CERN. Fun fact, those giant magnetic doors weigh thousands of pounds and take 2 full days to open.
#CERN #LHC #Physics #particlecollider #quantum #science #facility #HiggsBoson
Dianna in front of the ALICE experiment at CERN. Fun fact, those giant magnetic doors weigh thousands of pounds and take 2 full days to open.
#CERN #LHC #Physics #particlecollider #quantum #science #facility #HiggsBoson
Dianna in front of the ALICE experiment at CERN. Fun fact, those giant magnetic doors weigh thousands of pounds and take 2 full days to open.
#CERN #LHC #Physics #particlecollider #quantum #science #facility #HiggsBoson
Health update – Dianna now has a PICC line inserted into her arm. The PICC is used to help Dianna receive IV medications and fluids without having an adverse reaction to them. The PICC is threaded up the arm through a large blood vessel that extends into the chest.
(Dianna’s editor) – It’s great that there are solutions like this to help Dianna get what she needs to help her in her recovery. And she genuinely looks better than she did earlier in the year. I can interact with her for a couple minutes a couple times a day, as apposed to her and I exchanging only a couple words a month like we were in March. But, with all that said, she is still daily bed-ridden and has a long road ahead of her. Many people ask daily if there are any health updates, and unfortunately, it’s a very long and slow process with not a lot of progress. I have started helping Kyle care-take for Dianna full time, and being here is very surreal. She is still very very sick, but we are staying hopeful. And none of it would be possible without the online support. I’ll give more updates whenever I can. Thanks everyone.
If you’d like to support Dianna during her recovery, you can do so here → https://www.patreon.com/physicsgirl
http://physicsgirl.org/
http://twitter.com/thephysicsgirl
http://facebook.com/thephysicsgirl
http://instagram.com/thephysicsgirl
#MECFS #covid #longcovid #chronicfatigue #PICC #piccline #notaflu
Kyle here – we wanted to share this (Dianna writes me notes when talking is too hard). For context, when she says she “cant do something” it means there’s often an energy or symptom cost to trying. For the last 5 months, tiny amounts of activity trigger awful symptoms.
The symptoms can come unpredictably, either immediately or delayed for a day. For her, that’s the hardest part of MECFS and long covid – not knowing when or how sick she’ll become if she tries to be herself. #longcovid #MECFS
In this video Kyle gives a small health update as well as a way of thinking about Dianna’s path to recovery.
If you’d like to support Dianna during her recovery, you can do so here → https://www.patreon.com/physicsgirl
#mecfs #longcovid #notaflu
