Emma Heming Instagram – The cover story of today’s NYT Magazine explores a family’s journey contending with the fact that they have a 50-50 chance of carrying the genetic mutation of frontotemporal dementia (FTD.) This article was so emotionally impactful that it took me days to get through reading it, I just couldn’t do it in one sitting given how deeply serious and heavy it was. In fact, I still haven’t fully been able to shake off the pain I felt listening to the devastating details of this family’s journey. Proceed with caution. Robert Kolker, who covered their story, did it in a very sensitive and compassionate way. The family was so courageous to share their personal story and so selflessly—it has served our community well. These are, unfortunately, the stories it takes to raise awareness around this devastating disease. I know they will be heard and ultimately make a difference for your family, mine, and I pray, for theirs whether it be genetic or sporadic cases. My hope is the next time FTD makes the cover of the NYT Magazine, it’ll be a story about a cure, an efficacious drug, and/or a faster way to diagnose this horrendous disease before it evolves into something unmanageable. If you are a family in need of support today, please take advantage of all @theaftd resources have available to you. (links in bio) @bobkolker @nytmag #ftdawareness #frontotemporaldementia #endftd