Jennie Jacques Instagram – More than EVER before I know in my heart 💙🦋the CHANGE is coming for #pwme off the back of the science 🧬 to date 🦠 & the horror of Covid-19 which ultimately kicked everyone up the bum to look seriously into what a viral infection is capable of – it’s not new and it ain’t mysterious or bizarre 😂 There have been #millionsmissing for years upon years and groups of dedicated scientists #polybio #decodeme working with very little funding for this horrendous condition…
The absolute fools #pacetrial – many with their vested interests – & any other specialists who forgot how to read – & dared to coin a physiological (severely disabling) disease as “all in the mind” are about to eat humble fucking pie 🥧
Now don’t mince my words! #mentalhealth & illnesses of the mind are horrific. In my case secondary depression infiltrated during the 2nd year – the word secondary here is key 🔑 I was unable to clear the viral load from blood 🩸 for a long time; unusual, but meant I couldn’t be “dismissed.”
Prescribing graded exercise to a person with M.E. is like asking a person with a broken leg to hop on it. Thank goodness the NICE guidelines changed in 2021. Now, they need implementing & we need a protocol for #severeme
The pie 🥧 has been sat on the table for a long time 🕰️ so let Queen Judith heat it up for you; make sure it’s served nice & hot… the clock is ticking… the “jig is up.”
😂
#hope #me
A huge thank you 🙏 to #thereforme the patient & carer led campaign which I’ll be championing on Twitter/X as the community take part as best we can in a Twitter storm ⛈️ 4-5pm U.K. time – come and join us?!
P.S sometimes hard to show a neuro immuno metabolic disease in pics – but I wanted to put a mixed collection together of before, “after” & during the rollercoaster 🎢 with a huge firework 🎆 of love to any person who can regrettably relate 💙 | Posted on 17/Sep/2024 19:58:06
