Emma Heming

Emma Heming Instagram – I first learned about @lindejlee’s story from the @remembermepodcast, which gave me chills. The first part focused on her mother, Allison’s, battle with frontotemporal dementia (FTD), which went undiagnosed for over a decade. I remember listening to the first part with my chin on the floor, utterly shocked by the struggles Allison and her family faced. And then I thought—there’s a part two to this tragic story!? Where could it possibly go from here?
Well, Linde and her two sisters, Jenica and Ashlyn, bravely underwent genetic testing and discovered they carried the same MAPT mutation that caused their mother’s FTD. With a 50% chance of developing FTD themselves, they turned their fear into action, working with scientists to find a cure.
What a powerful read this story was in today’s New York Times, written so eloquently by Virginia Hughes. Linde and her family are trailblazers, actively contributing to research that could lead to treatments and cures for both genetic and, one day, sporadic forms of FTD. Their tireless work has the potential to help countless others affected by this horrendous disease.
Link to this NYT piece is in my bio.
#endFTD | Posted on 23/Dec/2024 06:06:15