Today marks 16 years with the love of a lifetime. We’ve shared monumental highs and devastating lows, and through it all, we’ve built something timeless. I’m so deeply grateful for every chapter I’ve had with him and all the ones we’ll continue to write, in our language of unconditional love 💙
17 years of us ❤️ Anniversaries used to bring excitement — now, if I’m honest, they stir up all the feelings, leaving a heaviness in my heart and a pit in my stomach. I give myself 30 minutes to sit in the ‘why him, why us,’ to feel the anger and grief. Then I shake it off and return to what is. And what is… is unconditional love. I feel blessed to know it, and it’s because of him. I’d do it all over again and again in a heartbeat 💞
Spotting a first responder, Bruce never missed a chance to show his gratitude with a heartfelt handshake and a “thank you for your service.” Yesterday was no different ❤️🤍💙
In the blink of an eye, she’s thirteen -our bright, beautiful Mabel Ray. I’m grateful for the joy and color she brings to our world. She moves through life with kindness and heart, and we love her more than words can hold. Happy Birthday to our sweet girl! 💙
It’s Bruce’s birthday, and if there’s one thing I know, it’s that there’s no greater fan than a Bruce fan. So flood him with all the love today, he will feel it, I swear he will. You are one powerful bunch. I love how you rally for him, and I’m so grateful that he has you ✨
Caregivers need care too. Period. Full stop. #supportcaregivers
You laughter = my favorite love story ❤️
Did you receive any support or resources at the diagnosis appointment? Or was it just me who walked away with absolutely nothing? Would love to know below 💙 #CaregiverSupport #caregiverroadmap
Bah humbug to stringing Christmas lights! And if anyone says I should have started from the top…those are fighting words 😉🎄
Part 2! How’d we do?🎄❤️💚🎄
This book is for caregivers, to remind them they are not alone and for the people in their lives to learn how they can support them 💙 The idea that caregiving is a solo mission is outdated. Caregiving is a societal responsibility. Dare I hope this book sparks a shift in how we, as a society, view and support caregivers 💙 #CaregiversNeedCare #SupportCaregivers @openfieldbooks
Caregiving takes a village, yet most are doing it alone. And let me tell you, it’s not sustainable. Check in on caregivers. Show up for them. Without them, none of this works 💙 #CaregiversNeedCare #supportcaregivers
FTD doesn’t get to write my family’s story—I do. Advocacy has been my lifeline, transforming grief into action. It’s my way of giving FTD the middle finger and making it clear that powerful advocates, care partners, researchers, scientists, medical professionals, and community leaders are coming for it—and I’m right there with them. I’m looking forward to seeing what 2025 has in store for us.
Book update 📕 @mariashriver @openfieldbooks
Anyone have an alternative phrase for 24/7? Writer’s block is real!
💙 National Caregivers Day 💙 Let’s move away from saying, “Let me know if you need anything,” and instead say, “Here’s how I can help you.” It’s tangible, actionable, and takes the burden off the caregiver to decide. Be specific—offer real support. Drop off a meal, run an errand, or surprise them with their favorite coffee. Take the guesswork off their plate. Caregiving is heavy, but support doesn’t have to be complicated. A small, thoughtful act can make all the difference 💞 #NationalCaregiversDay #SupportCaregivers #SmallActsBigImpact
Any thing that involves them will always be my idea of fun ♥️🐭🖤
I first learned about @lindejlee’s story from the @remembermepodcast, which gave me chills. The first part focused on her mother, Allison’s, battle with frontotemporal dementia (FTD), which went undiagnosed for over a decade. I remember listening to the first part with my chin on the floor, utterly shocked by the struggles Allison and her family faced. And then I thought—there’s a part two to this tragic story!? Where could it possibly go from here? Well, Linde and her two sisters, Jenica and Ashlyn, bravely underwent genetic testing and discovered they carried the same MAPT mutation that caused their mother’s FTD. With a 50% chance of developing FTD themselves, they turned their fear into action, working with scientists to find a cure. What a powerful read this story was in today’s New York Times, written so eloquently by Virginia Hughes. Linde and her family are trailblazers, actively contributing to research that could lead to treatments and cures for both genetic and, one day, sporadic forms of FTD. Their tireless work has the potential to help countless others affected by this horrendous disease. Link to this NYT piece is in my bio. #endFTD
24 hrs in Pennsylvania 💨💨
24 hrs in Pennsylvania 💨💨
24 hrs in Pennsylvania 💨💨
Advocates, start your engines! World FTD Awareness Week is Sept 21–28, and now’s the time to get those proclamations and resolutions in motion. Let’s aim for one in every state! 🔹Why does this matter? Because awareness = action. When elected officials understand FTD, they’re more likely to support funding, research, and policies that make a difference. 🛠️ Ready to take the next step? Head to @theaftd’s website for a full toolkit—sample letters, strategies, and everything you need to get started. Link in bio. ✅ Let’s raise our voice and get FTD awareness on the map, state by state. We can #endftd together.
It was a family & friends affair at @natprodexpo! 🫶🏽 @maketimewellness is more than a brand, it’s personal and driven by purpose. We’re here to get the world thinking seriously about women’s brain health. Because honestly, when was the last time someone asked you about your brain? 🧠 It’s time to join the Make Time movement. Let’s shift the conversation together! 💞🌈🧠 #expowest #brainhealth #maketimewellness
Be specific💙Be intentional💙Show up💙 Caregivers don’t have the bandwidth to make another decision—so take it off their plate. Tell them what you can do. It will make all the difference 🤍 #NationalCaregiversDay #SupportCaregivers #SmallActsBigImpact
