Congratulations @emmahemingwillis! 💙🥂 THE UNEXPECTED JOURNEY is a New York Times bestseller! For anyone caregiving for a loved one with any form of dementia, and even for those caregiving for other conditions, THE UNEXPECTED JOURNEY shows that you are not alone.
💙 New York, we’re so close! The FTD Registry Bill (S598B) is on its way to @GovKathyHochul ‘s desk and her signature could make history. This bill would create the first statewide research registry in the nation dedicated to frontotemporal dementia (FTD). It would finally give doctors and researchers real data to track diagnoses, raise awareness, and improve care. The bill has already passed unanimously in both houses and now we need your help to get it over the finish line. 💙 Repost this video 📲 Tag @GovKathyHochul Let’s make New York a model for every state to follow because when we can finally measure the problem, we can start to change it. #endFTD #frontotemporaldementiaawareness #ftdawareness
Make Time Wellness co-founders @emmahemingwillis and @helenchristoni share insights and wisdom about how women’s brain health is so often overlooked, the words that every caregiver needs to hear, and rediscovering joy even in the hardest seasons of life on The Midlife Chrysalis Pod with @chipconley. #maketimewellness #caregiver #caregiversupport #brainhealth #brainhealthawareness
Caregivers are often isolated without vital support to help them navigate the path ahead of them. Tune in as @emmahemingwillis shares essential advice for fellow caregivers about connection and community from her conversation with @helenchristoni and @chipconley on The Midlife Chrysalis Pod. #maketimewellness #caregiver #caregiversupport #brainhealth #brainhealthawareness
What an incredible few days @unravelledplay: A True Story of Transformation at @thewallisbh. After the performance, I had the privilege of joining a powerful panel discussion, “What’s Coming Next for FTD,” alongside Dr. Bill Seeley (UCSF Neurologist), Susan Dickinson (CEO of @theaftd), @lindejlee (FTD Advocate), and Brandy Matthews (@elilillyco Lilly Pharmaceuticals), moderated by Dr. Emily Silverman. Together, we explored the future of FTD through the lens of policy, science, lived experience, and advocacy, and how we can build greater public awareness. It was also so special to have friends and family in the audience who got to hear about the FTD Caregiver’s Roadmap, an idea I shared with Dr. Bruce Miller that has been brought to life by @ucsf and adapted by @cedarssinai. I’m deeply grateful to be part of this compassionate community working to change what a diagnosis looks like for the next family. 💙 #endFTD
What an incredible few days @unravelledplay: A True Story of Transformation at @thewallisbh. After the performance, I had the privilege of joining a powerful panel discussion, “What’s Coming Next for FTD,” alongside Dr. Bill Seeley (UCSF Neurologist), Susan Dickinson (CEO of @theaftd), @lindejlee (FTD Advocate), and Brandy Matthews (@elilillyco Lilly Pharmaceuticals), moderated by Dr. Emily Silverman. Together, we explored the future of FTD through the lens of policy, science, lived experience, and advocacy, and how we can build greater public awareness. It was also so special to have friends and family in the audience who got to hear about the FTD Caregiver’s Roadmap, an idea I shared with Dr. Bruce Miller that has been brought to life by @ucsf and adapted by @cedarssinai. I’m deeply grateful to be part of this compassionate community working to change what a diagnosis looks like for the next family. 💙 #endFTD
What an incredible few days @unravelledplay: A True Story of Transformation at @thewallisbh. After the performance, I had the privilege of joining a powerful panel discussion, “What’s Coming Next for FTD,” alongside Dr. Bill Seeley (UCSF Neurologist), Susan Dickinson (CEO of @theaftd), @lindejlee (FTD Advocate), and Brandy Matthews (@elilillyco Lilly Pharmaceuticals), moderated by Dr. Emily Silverman. Together, we explored the future of FTD through the lens of policy, science, lived experience, and advocacy, and how we can build greater public awareness. It was also so special to have friends and family in the audience who got to hear about the FTD Caregiver’s Roadmap, an idea I shared with Dr. Bruce Miller that has been brought to life by @ucsf and adapted by @cedarssinai. I’m deeply grateful to be part of this compassionate community working to change what a diagnosis looks like for the next family. 💙 #endFTD
What an incredible few days @unravelledplay: A True Story of Transformation at @thewallisbh. After the performance, I had the privilege of joining a powerful panel discussion, “What’s Coming Next for FTD,” alongside Dr. Bill Seeley (UCSF Neurologist), Susan Dickinson (CEO of @theaftd), @lindejlee (FTD Advocate), and Brandy Matthews (@elilillyco Lilly Pharmaceuticals), moderated by Dr. Emily Silverman. Together, we explored the future of FTD through the lens of policy, science, lived experience, and advocacy, and how we can build greater public awareness. It was also so special to have friends and family in the audience who got to hear about the FTD Caregiver’s Roadmap, an idea I shared with Dr. Bruce Miller that has been brought to life by @ucsf and adapted by @cedarssinai. I’m deeply grateful to be part of this compassionate community working to change what a diagnosis looks like for the next family. 💙 #endFTD
What an incredible few days @unravelledplay: A True Story of Transformation at @thewallisbh. After the performance, I had the privilege of joining a powerful panel discussion, “What’s Coming Next for FTD,” alongside Dr. Bill Seeley (UCSF Neurologist), Susan Dickinson (CEO of @theaftd), @lindejlee (FTD Advocate), and Brandy Matthews (@elilillyco Lilly Pharmaceuticals), moderated by Dr. Emily Silverman. Together, we explored the future of FTD through the lens of policy, science, lived experience, and advocacy, and how we can build greater public awareness. It was also so special to have friends and family in the audience who got to hear about the FTD Caregiver’s Roadmap, an idea I shared with Dr. Bruce Miller that has been brought to life by @ucsf and adapted by @cedarssinai. I’m deeply grateful to be part of this compassionate community working to change what a diagnosis looks like for the next family. 💙 #endFTD
We need to FEEL to heal. But sometimes we don’t have the luxury of time to go through a whole process. When overwhelming feelings come, we don’t want to ignore them, numb them, or suppress them. We want to feel them and move them and then get moving again. We may need to come back to them when time and space allows, but it’s important to have some immediate space to feel so they are acknowledged and don’t get trapped in the system. Try this: -Name what you are feeling -Give yourself 30 minutes to feel it (no self-judgement) and express it -Then ask yourself, what’s one loving thing I can do for myself? And remember, you never have to go through it alone. Talk it out — with a friend, a therapist, even a journal. Allow your feelings the acknowledgment and outlet they deserve. Comment MAKE TIME to listen/watch this week’s episode.
Our lean, mean @maketimewellness team took on @natprodexpo and started asking women one simple question… “When was the last time someone talked to you about your brain?” The answer? Almost never. And that’s exactly why we exist. 🧠✨ We hosted a Women’s Brain Health panel, met so many incredible people, and our Brain, Body & Beauty drink powder became a NEXTY finalist. Because at Make Time, we’re here to get the world talking seriously about women’s brain health and empower women to take care of their most valuable asset. Your brain. And trust me… we’re just getting started. 🎯
Our lean, mean @maketimewellness team took on @natprodexpo and started asking women one simple question… “When was the last time someone talked to you about your brain?” The answer? Almost never. And that’s exactly why we exist. 🧠✨ We hosted a Women’s Brain Health panel, met so many incredible people, and our Brain, Body & Beauty drink powder became a NEXTY finalist. Because at Make Time, we’re here to get the world talking seriously about women’s brain health and empower women to take care of their most valuable asset. Your brain. And trust me… we’re just getting started. 🎯
Our lean, mean @maketimewellness team took on @natprodexpo and started asking women one simple question… “When was the last time someone talked to you about your brain?” The answer? Almost never. And that’s exactly why we exist. 🧠✨ We hosted a Women’s Brain Health panel, met so many incredible people, and our Brain, Body & Beauty drink powder became a NEXTY finalist. Because at Make Time, we’re here to get the world talking seriously about women’s brain health and empower women to take care of their most valuable asset. Your brain. And trust me… we’re just getting started. 🎯
Our lean, mean @maketimewellness team took on @natprodexpo and started asking women one simple question… “When was the last time someone talked to you about your brain?” The answer? Almost never. And that’s exactly why we exist. 🧠✨ We hosted a Women’s Brain Health panel, met so many incredible people, and our Brain, Body & Beauty drink powder became a NEXTY finalist. Because at Make Time, we’re here to get the world talking seriously about women’s brain health and empower women to take care of their most valuable asset. Your brain. And trust me… we’re just getting started. 🎯
Our lean, mean @maketimewellness team took on @natprodexpo and started asking women one simple question… “When was the last time someone talked to you about your brain?” The answer? Almost never. And that’s exactly why we exist. 🧠✨ We hosted a Women’s Brain Health panel, met so many incredible people, and our Brain, Body & Beauty drink powder became a NEXTY finalist. Because at Make Time, we’re here to get the world talking seriously about women’s brain health and empower women to take care of their most valuable asset. Your brain. And trust me… we’re just getting started. 🎯
I’m honored to be speaking at the Caregiver Nation Summit on November 5th. I’ll be joining other advocates and leaders in the caregiving space to help amplify the voices of family caregivers and push for the recognition and support they deserve. Whether you’re joining from D.C. or tuning in from home, this Summit is about connection, action, and hope because every caregiver’s voice deserves to be heard. 💙 Huge thanks to the @caregiver_nation – National Alliance for Caregiving who’s bringing us together for this important conversation. In-person is sold out, but you can still register to join virtually and be part of the care movement: head to my link to bio to register or go to caregivernationsummit.org
History made in New York! 🗽 The FTD Registry Bill (S598B) has officially been signed into law by @govkathyhochul making New York the first state in the nation to establish a research registry dedicated to frontotemporal dementia (FTD). This law will finally give doctors and researchers the data they need to track FTD diagnoses, raise awareness, and improve care for families living with this disease. A huge thank-you to Assemblymember @amypaulin1 for championing this bill, and especially to @michellehincheynysenate. Your leadership, persistence, and courage in honoring your dad through this work have given our community so much hope and continues to inspire me. 💙 And to everyone who tagged, reposted, and raised your voices, it worked. This is community in action and proof of what’s possible when we come together. New York will be the model for every state to follow. This is just the beginning. #endFTD @theaftd
Looking forward to this book conversation with Patti Davis in Santa Monica, CA @zibbysbookshop on Nov. 3rd. One of my favorite bookstores.💙 I hope to see you there! Tickets are free – head to the link in my bio or visit emmahemingwillis.com to reserve your seat. 💙📘 @pattidavis10 @zibbyowens
Dementia doesn’t discriminate. It doesn’t care about status, fame, or past. It connects us in grief, in love, in truth, and in trauma. In these two beautiful pieces written by @louiseabryant, she shares her story with her late partner, Moose, alongside my story with Bruce. Different lives, different parts of the world, yet the same heartbreak, the same love. We’ve never met in person, only over Zoom for this interview, but talking to her felt like chatting with an old friend. We’ll be connected forever through this unfortunate thread we share. Our stories are part of the same fabric. And I can’t stress enough the importance of community, finding someone to talk to. Because as I’ve heard said, pain shared is pain divided. 💙 Link in bio @the.australian @vogueaustralia @harpercollinsaustralia
Dementia doesn’t discriminate. It doesn’t care about status, fame, or past. It connects us in grief, in love, in truth, and in trauma. In these two beautiful pieces written by @louiseabryant, she shares her story with her late partner, Moose, alongside my story with Bruce. Different lives, different parts of the world, yet the same heartbreak, the same love. We’ve never met in person, only over Zoom for this interview, but talking to her felt like chatting with an old friend. We’ll be connected forever through this unfortunate thread we share. Our stories are part of the same fabric. And I can’t stress enough the importance of community, finding someone to talk to. Because as I’ve heard said, pain shared is pain divided. 💙 Link in bio @the.australian @vogueaustralia @harpercollinsaustralia
Dementia doesn’t discriminate. It doesn’t care about status, fame, or past. It connects us in grief, in love, in truth, and in trauma. In these two beautiful pieces written by @louiseabryant, she shares her story with her late partner, Moose, alongside my story with Bruce. Different lives, different parts of the world, yet the same heartbreak, the same love. We’ve never met in person, only over Zoom for this interview, but talking to her felt like chatting with an old friend. We’ll be connected forever through this unfortunate thread we share. Our stories are part of the same fabric. And I can’t stress enough the importance of community, finding someone to talk to. Because as I’ve heard said, pain shared is pain divided. 💙 Link in bio @the.australian @vogueaustralia @harpercollinsaustralia
🎭 Don’t miss @Unravelledplay: A True Story of Transformation, which is making its world premiere at @thewallisbh in Los Angeles, October 17–19. I’ll be there on Oct. 18 for a post-show panel with other FTD advocates and experts to discuss What’s Coming Next in FTD – from research and policy to awareness and caregiving. Alongside the play, a Brain Health Festival will take place all weekend with free workshops, resources, and support from incredible organizations, including the new FTD Caregiver’s Roadmap which was an idea I shared that was brought to life by @ucsfmemoryandagingcenter and has since been adapted by Cedars-Sinai. And pre-signed copies of The Unexpected Journey (first come, first served) will be available on the 18th. 💙 🎟️ Tickets available — link in bio!
I just found out The Unexpected Journey debuted at #2 on the New York Times Bestseller list. I’m still trying to process it. I’m truly in shock, and so deeply grateful. Thank you from the bottom of my heart. My hope now is that this book cares for you, the way you’ve cared for me 💙
Over 40 million people in the United States are caregiving for a family member. If you’re reading this, chances are that one day you’ll be taking care of a spouse, a parent, or a child and will take on major emotional, physical, and financial responsibility. My guest this week on the @oprahpodcast, @emmahemingwillis, knows this all too well. In 2022, her husband, legendary actor Bruce Willis, was diagnosed with frontotemporal dementia. She was given a pamphlet and told to check back in a few months. With no hope or direction, Emma walked out of the doctor’s office with fear and confusion. Now she’s written a book titled, “The Unexpected Journey: Finding Hope and Purpose on the Caregiving Path,” which serves as a guide for people in her position. Our conversation is available now on my YouTube channel (link in bio) or wherever you podcast.
