Jennie Jacques Instagram – This book is Judith’s Athelstan 💥 😂 metaphor for pure gold #vikings
Packed with practical advice on managing OI symptoms; medications, physical therapy & lifestyle tweaks while emphasizing individualized treatment plans; one size never fits all.
I want to gift it to every U.K. cardiologist especially off the back of #longcovid where cases of virus initiated disability’s only increasing – if only the #millionsmissing decades prior had not been dismissed?
#meawareness
“Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment” by Dr. Peter C. Rowe is officially my new bible!
If you’ve got OI, POTS, ME/CFS, EDS, related disorders OR feel like you also might be “allergic to gravity” – this is a flashlight in a dark maze.
Dr. Rowe, a professor of pediatrics at Johns Hopkins & director of their Chronic Fatigue Clinic, brings decades of clinical wisdom to this no-fluff guide written for patients, families, & healthcare providers alike.
GET THE BOOK. Link in description on my latest YouTube video! @jenniejacques1 The Monster In ME!
One of its biggest wins is the use of real-life case studies – relatable examples of patients managing OI with strategies that feel doable & a dose of “oh, so I’m not alone in this.”
In short: Dr. Rowe’s compassionate, practical approach turns this book into the toolkit for navigating OI – empowering readers who are trying to take back some control over this rubik’s cube of an illness.
So far only started Ivadbradine re meds in 2025 – BUT luckily for me it seems to fit 💪 & I’m keen to continue to explore more.
💙🦋
#spoonielife #chronicillness #chronicpain #potssyndrome #eds #orthostaticintolerance #books #bookstagram #science #medical | Posted on 02/Feb/2025 16:38:41
