BBC Spotlight segment on #MECFS and the lack of funding for the DHSC delivery plan, Includes Interview with the family of Alice Barrett, who talk about Alice’s severe ME/CFS and the #ThereforME campaign #FundThePlan
Blind & Primed. Watch it now! Link in bio. James may be blind, but he still has vision 🤘🏻 With immersed audio description by @jenniejacques1 #documentary #blindandprimed #gopro #sportsfilm #emzfit #visuallyimpaired #audiodescription Photo shows Rose and James throwing a rock and roll hand signal while standing outside Skydive Northwest, they both beam with smiles.
👀 This looks GOOD! Thanks @jenniejacques1 Posted @withregram • @jenniejacques1 Dr Peter Rowe is very kindly answering a few questions about our latest interview ❤️ Comment via my YouTube The Monster In ME @jenniejacques1 – link in bio #vikings #orthostaticintolerance #orthostatichypotension #longcovidawareness #meawareness #spoonielife #spooniesupport #potssyndrome #eds #edsawareness #health #fitness #chronicillness
Jennie Jacques with Professor Lambert persistent infection & immune response in M.E. & Long Covid 💡 Sharing in case it helps someone else. 📺 Full video on YouTube – link in bio! 🎥 With @jenniejacques1 #ChronicIllness #JennieJacques #MedicalMystery #arminlabs #aonm
There’s always a way! Watch the full film at Emzfit.co.uk 🥊 @jamesconnell819 🥊 coach – @rosemac01 Audio description- @jenniejacques1 #BlindandPrimed #Boxing #Coaching #BoxingCoach #Film #accessiblesport #Emzfit
Meet Maureen – she used to be my number one fan… until Home and Away and Neighbours stole her heart & officially “booshed” me 😂 @homeandaway @neighbours Maureen is in the spotlight chatting & boxing 🥊 in this beautiful @upandoutproject film and I’m honestly obsessed with it! Link in bio – go watch it now! This short movie is uplifting, kind-hearted & carries a powerful message about the importance of caring for our elderly 🤜 POWER to the pensioners! Proud to support inclusive movement in sport with @emzfitofficial because movement is medicine for so many. As someone living with M.E., I know all too well how physical activity can be a luxury & even harmful to us poor lot left chronically ill 💩 & I miss it so so much! BUT for others, especially older adults, it can be transformative #magic So if you have a loved one who can move, please 🙏 help them stay active… it could be their superpower. The Up&Out Project is doing incredible work engaging seniors through play, laughter, and gentle movement. Give it a watch and share the love! #ElderlyCare #InclusiveFitness #UpAndOutProject #MovementIsMedicine #boxing #training #deafawareness
Lipid defenses. Cellular strongholds. The key to cellular health ⚔️ I’m looking forward to interviewing @wagemanjosh and reviewing The Lipid Neighbourhood Home Security System; a book that dives into how lipids maintain cell integrity and what happens when their balance is disrupted. Stay tuned! My own battle with unpredictable health has created a traffic jam of extraordinary people to interview! Meanwhile, you can watch the latest video on tackling infection, inflammation & immune damage 💥 all at once. Link in bio @jenniejacques1 And may I advise you buy this book 📖 while you wait. Overall, it’s a must-read for anyone interested in cellular health, the science of fat, and how the microscopic world inside our bodies influences overall wellness.
Queen Judith wants more in terms of proper care and treatment for #pwme #longcovid Actress Jennie Jacques candidly discusses her medical history & @arminlabs @aonmhealth test results with Professor Jack Lambert Infectious Diseases specialist; PERSISTENT INFECTION, INFLAMMATION, DAMAGED IMMUNE SYSTEM… how can we attempt to target 🎯 all three? ““Testing is supportive of your diagnosis but it doesn’t prove your diagnosis” YouTube Channel The Monster In M.E. #jenniejacques
New video – LINK IN BIO 💥 Who doesn’t love a Rubik’s Cube…
Jennie Jacques talks candidly about her own medical history with Professor Jack Lambert about persistent infection, inflammation, immune dysfunction and how to potentially treat it. LINK IN BIO ⬆️ @jenniejacques1 “I’m generally a private person but it would be criminal for me not to use my platform as responsibly as I can, to show the lack of care available for this Rubik’s Cube of an illness. I don’t have answers but I’m open in my search for them as I try hard to to increase my quality of life. Even at the “milder end” of M.E. it’s terribly difficult to navigate. I remain on a rollercoaster with my health that I don’t want to be on. Prior to being mostly housebound (and still at times bed-bound) I loved and lived an extraordinary active and fulfilling, productive life. No one – I repeat – no one – chooses this. And most “choices” are snatched from you when you have it. A huge shout out to all warriors in the #chronicillnesscommunity with respect and love.” #mecfs #meawareness #uti #chronicuti #longcovid #longcovidawareness #science #dysautonomia #potssyndrome #medicalgaslighting #womenshealth #healthiswealth #lymedisease #actress #vikings #jenniejacques @arminlabs @aonmhealth #bloodsandbeyond #mobilephlebotomy #mobilephlebotomist @justherbsscotland @lymeresourcecentre
@wesstreeting @ashleydaltonmp I am LUCKY 🍀 to get some “good days” but even my better days are a long way from full health…. #fundtheplan #thereforme There are #millionsmissimg and millions more to come off the back of #LongCovid 💙🦋 #ThereForME #meawareness #millionsmissing #longcovidawareness #ebv #infectiousdisease #lymedisease #pots #eds #severeme #mecfs #chronicillness #disability #dysautonomia #chronicuti #chronicpelvicpain #chronicpain
Re-watched this ✨ & completely blown away (AGAIN!) by a truly inspirational story captured with @gopro @goprouk It’s the kind of film that fills your heart ❤️ leaves you in awe, & yes… brings tears of happiness to your eyes. I just love it! Watch the FULL movie 🎥 link in my bio! @emzfitofficial @rosemac01 It’s raw, it’s human, & it stays with you long after the credits roll. Gimme more! I won’t spoil a thing, but if you’re reading this, take it as a sign: go watch this on Emzfit’s YouTube channel! You won’t regret it. My part was tiny (just a wee bit of audio description!) but the real star 🌟 of the show is James! 👏 What a guy @jamesconnell819 Oh & let’s not forget Rose… the quiet force of nature, polite, yet (strategically) violent, who helps make the magic 🪄🎥 happen. Think precision, power, & just the right amount of force… this ninja 🥷 was her own film crew! Blind & Primed doesn’t just tell a story, it grabs your emotions ❤️ & doesn’t let go. Raw, assertive, determined… with a touch of mischievous genius. 😏 🥊🪂 Don’t underestimate others. Don’t underestimate yourself. & definitely don’t underestimate a film made with zero budget. The film fest awards speak 🗣️ volumes, but you need to see the full film for yourself. Lend me ya ear 👂 & listen 👂 closely, you might just catch my sexy AD voice – brought to you by Rose’s expert accommodation of my ME-friendly recording style (aka: lying down intermittently & delivering my lines in small, energy-efficient bursts). 💁♀️ #sports #boxing #skydiving #pt #personaltrainer #boxingcoach #inclusivesport #inclusivity #gym #visuallyimpaired #shortfilm #filmfestival #audiodescription #blindawareness #motivation #inspiration #guiderunner #guiderunning 💥
Firstly buy this book 📖 for a WEALTH of info re Orthostatic Intolerance. Link in my bio. Secondly find a clinic/doctor via @dysautonomiaintl website by selecting the “Connect” tab & choosing “Find a Doctor,” to scroll down to access a list of UK-based specialists! And/OR @potsuk just look under CLINICS! Based on available information, these specialists are recognised for their expertise in autonomic disorders, including orthostatic intolerance and PoTS. However, we strongly encourage individuals to research any practitioner, discuss their treatment approach, and ensure it aligns with their personal needs and the latest clinical guidelines. Personally I think THIS book should be in every clinic and a copy to every patient and family member taking care of someone with OI inclusive of employees who need to accommodate staff who suffer if they’re even able to work. I don’t recommend it lightly. I’ve got nothing to gain other than spreading good info to people who have sadly been left in the dark; check out my book review in last post then click the link in my bio to get yours. 💙🦋 #mecfs #longcovidawareness #meawareness #chronicillness #millionsmissing #pwme #dysautonomia #eds #hypermobility
This book is Judith’s Athelstan 💥 😂 metaphor for pure gold #vikings Packed with practical advice on managing OI symptoms; medications, physical therapy & lifestyle tweaks while emphasizing individualized treatment plans; one size never fits all. I want to gift it to every U.K. cardiologist especially off the back of #longcovid where cases of virus initiated disability’s only increasing – if only the #millionsmissing decades prior had not been dismissed? #meawareness “Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment” by Dr. Peter C. Rowe is officially my new bible! If you’ve got OI, POTS, ME/CFS, EDS, related disorders OR feel like you also might be “allergic to gravity” – this is a flashlight in a dark maze. Dr. Rowe, a professor of pediatrics at Johns Hopkins & director of their Chronic Fatigue Clinic, brings decades of clinical wisdom to this no-fluff guide written for patients, families, & healthcare providers alike. GET THE BOOK. Link in description on my latest YouTube video! @jenniejacques1 The Monster In ME! One of its biggest wins is the use of real-life case studies – relatable examples of patients managing OI with strategies that feel doable & a dose of “oh, so I’m not alone in this.” In short: Dr. Rowe’s compassionate, practical approach turns this book into the toolkit for navigating OI – empowering readers who are trying to take back some control over this rubik’s cube of an illness. So far only started Ivadbradine re meds in 2025 – BUT luckily for me it seems to fit 💪 & I’m keen to continue to explore more. 💙🦋 #spoonielife #chronicillness #chronicpain #potssyndrome #eds #orthostaticintolerance #books #bookstagram #science #medical
Fun clip for the @historyvikings fans – you’re not forgotten! And if you can please do support the #millionsmissing with the same illness which currently prevents Queen Judith rising back to the big screen 📺 💥 #meawareness #mecfs #orthostaticintolerance #orthostatichypotension #longcovidawareness #chronicillness #autoimmunedisease #severeme #spoonie #pwme If you’d like to help the science please donate to @polybio.rf If you’d like to continue to learn more about M.E. subscribe to my YouTube @jenniejacques1 The Monster In ME
Lend me your ear 👂 NEW video/interview 💙🦋✨
Watch. Listen. Learn. And 💯 buy Dr. Rowe’s book if you have OI or you’re looking after someone with it 💪 LINK IN BIO & an easy short link for the book 📖 is in the description on my YouTube The Monster In ME – jennniejacques1 NEXT video coming soon to discuss BLOOD 🩸 results with Professor Jack Lambert with thanks to @arminlabs @aonmhealth NEW video/interview with Dr Peter Rowe on being allergic to gravity… #orthostaticintolerance #dysautonomia #meawareness
NEW VIDEO on @jenniejacques1 YouTube The Monster In ME LINK in bio for full interview! And you can buy the book link in description on my YouTube 💥 Interviewing Dr Peter Rowe #orthostaticintolerance with a teaser for part 2 of my interview with Professor Jack Lambert re @arminlabs @aonmhealth blood 🩸 test results #meawareness #mecfs #pots #dysautonomia #eds #longcovidawareness #exerciseintolerance #fitness #health #chronicillness #hormones
Home ⭐️ baker @its_whitney_witch Professional ⭐️ baker @daisy_chain_cupcakes Tiny ⭐️ baker @erin.lyra A huge heartfelt thanks to everyone who kindly donated to @smileforme and participated in the @bake4me_ Wicked Xmas Bake Off for #meawareness Karis Musongole @being_hattie & @laurenkellycasting are kindly gifting our tiny ⭐️ baker a little something extra with a mini camera 📸 to capture more bakes @instaxhq PLUS signed copies of the @wicked_musical programmes will be posted out to our star ⭐️ bakers – a lovely 💝 from the leads @itslaurapick @sarah_c_oconnor – inclusive of autographs from the @wickedmovie stars Karis & Hattie #youngelphaba #curiousmunchkin Brilliant 🤩
CHECK THIS OUT ❣️❕#bakinginspo #rockinaroundthechristmastree 🎄 Super talented #hobbybaker @cakesbylohaa has created this spectacular Christmas Tree brownie inspired by the original idea 💡 cooked up by @willowbarque 💥 Our collaboration baker has also filmed the process 🪄 We couldn’t be more grateful 🥹 LOVE it! Thank you @bake4me_ @willowbarque & @cakesbylohaa The Wicked Christmas Bake Off encourages all ages and levels of #baking and if you visit WWW.BAKE4ME.CO.UK you can find out more info! All funds raised go to a beautiful 😍 charity called @smileforme
I’m blown away by the creativity and kindness of the #bakingcommunity @daisy_chain_cupcakes leant her magic 🪄 to be one of our Collab Bakers aka Baking Heroes for @smileforme @bake4me_ www.bake4me.co.uk Here you can see how much joy 🤩 exists when another helps to bring someone else’s vision to life! #inclusivity #disabilityawareness ME robs too many of the ability to enjoy the smallest of hobbies so, we wanted @bake4me_ to provide an easy option for EVERYONE to be able to join in if they wished! Here’s the proof in the pudding 💥 🌟 @daisy_chain_cupcakes has granted a Christmas Wish and brought a huge smile to my week, seeing this amazing work! Thank you! @smileforme
As we near the end of 2024, I’m approaching my 7th year living with an illness that completely turned my world upside down 🌎 Each year, as a new one approaches, I always hope to leave behind the struggles, but as many of us with #chronicillness know, it doesn’t always work that way. We learn to adapt, to survive, and to keep going. Heading into 2025, I’m grateful for the support I’ll be able to experience with @visible.health 💪 Although I am yet to experience the benefits, just knowing I will have this device (and the helpful app too!) has genuinely brought some comfort and brightness into my journey ❤️🩹☀️ Not everyone reacts to infection the same way, and for many, disability initiated by it certainly isn’t a new story. Sadly, it’s something that has only increased since the pandemic, particularly with #longcovidawareness. My heart goes out to all my fellow #spoonies who’ve lost so much to this monster of an illness 💙 and despite everything I remain grateful for gaining insight into the wonderful people who are the #mecommunity I’ll continue to share my story and be a voice for the #millionsmissing who are fighting this battle too. Here’s to hope, healing, and progress—no matter how slow. 🌿🤞🐌 @bake4me_ @visible.health @longcovidsos @meactnet #meawareness #potsawareness #orthostaticintolerance #chronicillnesscommunity #invisibleillness #spoonielife #hopeforhealing #keepfighting
What will you bake? The theme is WICKED (of course!) but we also accept Christmas 🎄 bakes too! ALL ages and levels of baking encouraged ✨ Plus, if you’d like to join in but require a collaboration/buddy baker to make that possible (due your illness/disability) please check out our website! @bake4me_ can pair you up with someone who’ll create your idea! 🤗 💚💖💙 * #wicked #wickedmovie #wickedmusical #bakers #bakersofinstagram #wickedcake #christmasbaking #meawareness #spoonie #spooniesupport #longcovidawareness #pots #dysautonomia #chronicillness #disability #edsawareness #severeme #inclusivity
Thank you @jenniejacques1 for sharing about your experience of ME and @bake4me_ as you launch The Wicked Christmas Bake Off in support of us 🩵 Share a story by Jennie Jacques: smileforme.org.uk/shareastoryjenniejacques ID: Image 1. Half pale blue curved edge and half white curved edge background. The words ‘Share a story by Jennie Jacques’ at the top. In the centre a photo of Jennie and Bake4ME. The words ‘Jennie Jacques, Bake4ME creator, shares a piece as she launches The Wicked Christmas Bake Off in support of Smile For ME’ underneath. In the bottom right hand corner www.smileforme.org.uk/shareastory website link and Smile For ME logo. The other images are Jennie’s words which can be found on our website. Hashtags: #SmileForMECharity #PWME #ME #MECFS #MyalgicEncephalomyelitis #MEAwareness #Carers #Smile #SmileForME #Charity
