16 years with this special man. My love and adoration for him only grows 🤍
16 years with this special man. My love and adoration for him only grows 🤍
Bruce calls it the “inner circle.” It’s people that we are fortunate to have in our lives that we can call, trust and rely on. I’m lucky enough to have an inner circle of people that don’t offer a way to fix-it but can just listen. That helps tremendously.
That inner circle is also here on this channel. This past year it was imperative for me to finally be able to build community and connection. And you have shown up. People from all walks of life sharing the same unfortunate thread that connects us. I receive countless messages of love and support because Bruce is so beloved. That showers on him and I am fortunate enough to stand below that to catch those sprinkles that yet, feel like a waterfall of kindness. I wish I could answer all the messages because they are deep, raw and poetic but please know that I appreciate them so very much. It also makes me feel less alone. I am grateful to you 💞
From our family to yours, we wish you a very Merry Christmas!! 🎄🎁 🎅🏼🫶🏽
Whoa! Do you see it?? 🤍🤍☁️☁️
This post is for anyone needing to find their “inner circle.” I encourage you to find support. It was the game changer I didn’t know I needed.
Consider looking for a virtual support group. Support groups share helpful resources and offer a safe space to share your thoughts with others that understand.
In my bio you’ll find direct links to @wearehfc @theaftd @lorenzos_house support groups and programs.
My hope is that you’ll make time to find your community and make meaningful connections in 2024 💞
#carepartners #cargegiving #dementiaawareness #ftdawareness
In my humble opinion, silence is weird. Never be scared or nervous to reach out to someone who might be navigating rough waters because of your own fear. If you are leading with love and compassion, it will always be well received 💞
As a dementia caregiver specialist, advocate, and educator @iamtylewis knows what to apply for and what she qualifies for. To hear her story goes to show how our system is not designed to support our family caregivers. It’s complicated, ever changing and ultimately takes a toll on the family who are trying to do their best for their loved one. No one is winning here. I’m not even sure what to say about it or where to start but I’ll get there. What I see is that we have to do better to support our caregivers 🫂
@iamgertrudejordan #caregiversupport
The @americanredcross is experiencing an emergency blood shortage. It’s the lowest number of people giving blood in 20 years.
Did you know that every 2 seconds someone needs blood? Donors provide the only supply of life-saving blood for those in need.
To be able to donate my blood that will help someone else and their outcome, just feels good.
Head to www.redcrossblood.org to learn more and book an appointment near you ❤️⛑️
#NationalBloodDonorMonth #BloodDonor #GiveBloodSaveLives
The @americanredcross is experiencing an emergency blood shortage. It’s the lowest number of people giving blood in 20 years.
Did you know that every 2 seconds someone needs blood? Donors provide the only supply of life-saving blood for those in need.
To be able to donate my blood that will help someone else and their outcome, just feels good.
Head to www.redcrossblood.org to learn more and book an appointment near you ❤️⛑️
#NationalBloodDonorMonth #BloodDonor #GiveBloodSaveLives
They keep me fun and spunky, yet laser focused and motivated to want to leave this world a little better than when I arrived. What a gift to move through life with these two young ladies.
Happy Mother’s Day to you 💞
I just finished Patti Davis’s book, Floating in the Deep End: How Caregivers Can See Beyond Alzheimer’s.
And then I was fortunate enough to have lunch with Patti and tell her how moved I was by her book.
This book is hopeful, insightful and compassionate.
While I am not familiar with the journey of Alzheimer’s per se, I know what it’s like to be a care partner. I also really appreciated how knowledgeable Patti is about the world of frontotemporal dementia that is clearly evident within the pages.
Reading this book while making both a new connection and new friend was a beautiful way to start the year 🤍 @pattidavis10
#caregiversupport #dementiaawareness #frontotemporaldementia #endftd #alzheimersdisease
I just finished Patti Davis’s book, Floating in the Deep End: How Caregivers Can See Beyond Alzheimer’s.
And then I was fortunate enough to have lunch with Patti and tell her how moved I was by her book.
This book is hopeful, insightful and compassionate.
While I am not familiar with the journey of Alzheimer’s per se, I know what it’s like to be a care partner. I also really appreciated how knowledgeable Patti is about the world of frontotemporal dementia that is clearly evident within the pages.
Reading this book while making both a new connection and new friend was a beautiful way to start the year 🤍 @pattidavis10
#caregiversupport #dementiaawareness #frontotemporaldementia #endftd #alzheimersdisease
Head to the link in my profile to view my full remarks on why I’m supporting @michellehincheynysenate FTD Research Registry SB-7874 💌
@theaftd #ftdawareness #frontotemporaldementia #frontotemporaldegeneration
Kicking off this holiday with some FUN 🫧🫧🫧
Ok, but can we also just watch this heart cloud form? 🥹😍
When FTD, or any form of dementia touches your life, it’s hard to not be forever changed by its impact. My hope is that this book will provide comfort and hope to the next care partner as they embark on their new journey or for those, like myself who are on it 💞
Head to the link in my profile to learn more via @thesundaypaper
@mariashriver @openfieldbooks @penguinlifeus @penguinrandomhouse 📷 @belatheefinearts
I learned many things at the screening of, “For Love & Life: No Ordinary Campaign.”
• ALS or Lou Gehrig’s disease happens sporadically in 90% of cases. Meaning, it could just happen.
• That rare diseases aren’t really rare when they affect over 300 million people globally. Most are not well understood, and less than 5% have approved treatments.
• And that Brian Wallach and his wife Sandra Abrevaya are hands down, the most selfless badass powerhouse of a couple.
In the midst of Brian and his family’s life taking a complete turn, they founded “I AM ALS” as well as ultimately changing the face of ALS forever alongside a community of fierce advocates. Neurodegenerative diseases such as frontotemporal dementia (FTD), Huntington’s, MS, and Parkinson’s to name a few, will benefit from the ripple effects of their advocacy. I’m inspired by their determination that in the midst of their pain, they turned it into their purpose. I’m grateful for their immense kindness and generosity which will and does help millions of families who find themselves here. What a legacy they have made. I believe this movie will inspire others to fight for change. Their story premieres May 28th on Prime Video. Please watch and prepare yourself to feel moved and uplifted.
@alsyougone @abrevayasandra @iamalsorg @katiecouric @amazonmgmstudios @chanzuckerberginitiative
I learned many things at the screening of, “For Love & Life: No Ordinary Campaign.”
• ALS or Lou Gehrig’s disease happens sporadically in 90% of cases. Meaning, it could just happen.
• That rare diseases aren’t really rare when they affect over 300 million people globally. Most are not well understood, and less than 5% have approved treatments.
• And that Brian Wallach and his wife Sandra Abrevaya are hands down, the most selfless badass powerhouse of a couple.
In the midst of Brian and his family’s life taking a complete turn, they founded “I AM ALS” as well as ultimately changing the face of ALS forever alongside a community of fierce advocates. Neurodegenerative diseases such as frontotemporal dementia (FTD), Huntington’s, MS, and Parkinson’s to name a few, will benefit from the ripple effects of their advocacy. I’m inspired by their determination that in the midst of their pain, they turned it into their purpose. I’m grateful for their immense kindness and generosity which will and does help millions of families who find themselves here. What a legacy they have made. I believe this movie will inspire others to fight for change. Their story premieres May 28th on Prime Video. Please watch and prepare yourself to feel moved and uplifted.
@alsyougone @abrevayasandra @iamalsorg @katiecouric @amazonmgmstudios @chanzuckerberginitiative
I love this photo because if you look at everyone’s face, we’re all beaming with pride ☺️
FTD leaves families passionate about working for change, and raw from the day-to-day emotional impact this disease has on us. But we do the work to honor our loved ones and to make it a bit lighter for the next family. I hope we’ll never have to welcome you into this community but if you find yourself here, you’ll be surrounded by people who understand, care and will lift you and your loved one up 💌
It was a hopeful and incredibly inspiring day in New York’s State Capitol for families like yours and mine who have a loved one with frontotemporal dementia. @michellehincheynysenate has turned her pain into purpose, is leading the charge and continues to make noise in her home state, to pass the first-in-the-nation FTD focused state registry. This registry will track FTD clinical diagnoses, giving researchers and policy makers real insight into FTD’s prevalence. This data will make it possible for treatments to go to clinical trials with the goal of finding a cure. This bill is innovative, it would make all the difference and I would love to see this in our home state of California. Something I can’t wait to roll my sleeves up and advocate for. Between myself, Senator Hinchey, Susan Dickinson, fierce advocates and @theaftd, we made the rounds to speak with other Senators and legislators to get them on board to help get SB-7874 across the finish line! And in other exciting news! New York also recognized, for the 3rd year running—FTD Awareness Week which will be September 22nd-29th 2024. I’m leaving New York very encouraged. Next stop, California, we’ll see you soon! 😁👋🏽
@wearehfc’s CareCon is back and spreading love and support to care partners this Valentine’s Day with a line up of expert workshops, valuable resources, panels and a caring community.
I am honored to be part of a special panel alongside co-founder @laurenmillerrogen, @jonhuertas, @sandraabrevaya, @ctyexecbaker and #AmyBloom discussing topics close to my heart 🩷
Please head to the link in my bio to register now it is completely FREE 💕💫
#ftdawareness #dementiaawareness #caregiversupport #hilarityforcharity
I’ve been so inspired by the work we’ve been doing over at @maketimewellness and the importance in learning how to make more time. I don’t claim to do it perfectly. I struggle with being pulled in many different directions like most of us. But I do know, when I make more time for me, my whole family benefits and so do I.
I’m excited to be co-hosting this new @maketimepod with my co-founder @helenchristoni. These podcasts are bite-sized vignettes where we learn from people of all walks of life how they make time for the things that are important to them. My hope is you’ll be inspired by these episodes and that you’ll join our Make Time movement.
Catch us anywhere you listen to your podcasts or view us on YouTube 🤗 Link in bio 💕🎙️
Happy one year anniversary to us over @maketimewellness! It’s been a year of growth, learning and fun. @helenchristoni and I have accomplished more than we could have dreamed this first year. With our purpose still crystal clear—we are on a mission at Make time Wellness to get the world thinking seriously about women’s brain health. Because when was the last time someone spoke to you about your brain? Make time and come join the movement 🌈🧠💞 @maketimewellness @maketimepod
#maketimewellness #brainbodybeauty #maketimepodcast
